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Team Olivia Kay

Team Olivia Kay

September is Leukodystrophy Awareness month!! Our hearts are passionate about getting the word out about this rare disease that affects so many children. Most of the time, rare diseases get overlooked and there are so many progressive ones out there that affects families. During the month of September our family is raising money to help support the United Leukodsytrophy Foundation. This organization has a place in our heart because they have provided us a place to connect with other families who are going through the same situation like our own. Not only that, they are continually researching ways to find a cure. Olivia was diagnosed with Alexander Disease(a very rare and progressive form of Leukodystrophy) in December of 2010. On the very last Saturday in September, our family will be doing a walk in honor of Olivia and her fight against Leukodsytrophy. This walk not only raises awareness, but lets us reflect on the time that is so precious with our loved ones who are going through a horrible health situation. Would you consider helping spread awareness and support the United Leukodystrophy Foundation? Will you think of Olivia that very day and pray for her and our family that a cure will be found? Thank you for your support. -The Borodychuk's

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