Fundraising for the Nathan Massey Foundation
Lesch-Nyhan Disease is a very rare genetic disease for which there is currently no cure or treatment. Boys with LND suffer weak muscle tone, serious kidney problems, are unable to develop normally and have a distressing compulsion to self harm. Lesch-Nyhan Disease is very rare: it affects approximately one in two million births. There are only 25 known children with the disease in England and currently the long term prognosis for boys with Lesch-Nyhan Disease is very poor.Friends of ours, Amber and Mike Massey have a little boy, Nathan, with Lesch-Nyhan Disease. Nathan will be three in October and the complexity of the condition is beginning to become more of a challenge for him and his family. Amber, Mike, his family and friends are setting up a charity to raise money towards much needed and expensive specialist equipment and professional treatments. Myself and my sister Helen Maoudis want to help them and are running the Birmingham half marathon on 21st October for his charity. Any support you feel you are able to give is highly appreciated and will make a positive difference to the life of a young child and his family. Thank you.
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